As of May 3/12 SickKids has now become involved in Ryleigh's care. I decided at this point to start writing about her journey.
Ryleigh was born at 35weeks weighing 5lbs 5oz. She had some reflux issues between 3 and 6 months old. At 8 months old she had her first "episode" of convulsions. She did not have at fever. She then had two more episodes of shaking and spacing out. At this point we were referred to a Neurologist. Just before her first birthday the doctors became worried as she was very tiny and not gaining weight well. At 8months old she was 13lbs 6oz. She weighed 14lbs at her first birthday. She was referred to failure to thrive clinic (FTT) at SickKids. A whole work up of blood work was done.She saw the neurologist on May 1st. Blood work was done again at SickKids, and then repeated at SickKids. It all came back the same... unusual and unexplainable results. After these findings more referrals were sent.
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